Thread View: alt.support.epilepsy
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Started by Paulette L. Motzko
Mon, 26 Feb 1996 00:00
Needed Consulting Neurologist For Epilepsy Foundation Affiliate
Author: Paulette L. Motzko
Date: Mon, 26 Feb 1996 00:00
Date: Mon, 26 Feb 1996 00:00
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My name is Paulette Motzko who is trying her best to support the many people in our nation with epilepsy by acting as the Director of the Orange County Epilepsy Foundation affiliate. Epilepsy is such a complex disorder because there are so many variables which can affect a person who suffers from it. "Triggers", otherwise known as what makes a person susceptible to an aura or seizure, are as varied and unpredictable as the people affected by epilepsy iteself. Oftentimes, it takes years to even remotely predict what some of those triggers are. So often drugs don't work and cause many more problems than they ever help. Plus, in many cases, there are psychological implications from just living with it, day to day. I know firsthand about medicine overdoses accidentally prescribed by doctors, I know about unpredicted side effects, the limitations caused by having driving priveleges removed, social stigmas, no health insurance coverage, and the other things I "accepted" when I wore my first MedicAlert bracelet and took my first pills. I also know what the word "intractable" means, and I know that to some extent, all people with epilepsy are intractable to a certain small degree. The pills just can't do everything, and that's when kind doctors with integrity merge with a non profit organization, and make miracles happen. What I don't know is EVERYTHING! I'm making a plea to any doctor out there, be it neurologist or epileptologist, who would CONSULT with me from time to time. It would be comforting to get some quick information when I needed it. I would try and return the favor somehow if I was able. Thank you. Paulette Motzko (800) 509-3131 (714) 899-9903
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