🚀 go-pugleaf

Well, I'm showing improvement on Cytoxan.

Creatinine was 3.6.

2-3-04 it was 3.3

3-8-04 it was 2.9

Albumin on 2-3 was 2.3, on 3-8 it was 2.5.

Cytoxan is now dosed at 250mg/day.

Enapril(vasotec) has been started to combat proteinuria(8 g/day). Already on
Cozaar.

Gemfibrisol has been started to combat hypercholesterolemia[423 chol, 222
tri, 63 hdl, 316 ldl, 6.7 chol/hdl]. Already on Zocor.

Prednisone cut to 15, so I'll take 20 on odd days and 10 on even.

Since the slide has been stopped renal therapy(hd/pd/transplant) is no
longer in the offing.

Due to my size(6'1", 344lbs), I wouldn't be a candidate for PD. And
transplant centers don't do people with a BMI over 35.

Excuse me! I could adhere to the discipline of a gastric bypass without the
surgical intervention.

Detrol has been thrown into the mix to improve quality of life on torsemide.

The email address of creatineAMPERSANDmsn.com was available!

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From my past post of 1-8-04:

I pressed my nephrologist for a succinct diagnosis; what would you tell
another nephrologist I have:


Immune complex glomerulonephritis with nephrotic syndrome and mild to
moderate chronic renal insufficiency.

Urologist caught the rising creatinine level(2.0) by testing for contrast
tolerance before a CAT scan.  I've had a Bozniak II cyst in the right
kidney.  It is evaluated every 18 months.  I've had hematuria that went away
on its own.  Cytoscopy.  Retrograde Pylograms. IVP. Biopsy that shows immune
deposits in the tubules.  What the immune response is too is not known.  It
is known that it is not Lupus or anti dna.

Now I'm off all NSAIDS.  Treatment has been prednisone.  Cellcept in
increasing doses.  Now the plan is to try 100 mg a day of cytoxan with the
goal of reaching 150mg per day.  The alternative was to go to 1500 of
Cellcept twice a day. No more cellcept.  I had been prepared to go to 60 mg
of prednisone from 40. At one time 80mg of prednisone had got the creatinine
down from 5 to 2.  Instead, I'll be tapering to 30 on 2/1 and 20 on 3/1.  It
took 3 months for steroid induced diabetes to go away after ceasing
prednisone.

The risks have been explained to me.  Lymphomas, bladder cancer from the
cytoxan pooling in the bladder.  The loss of protein in the urine, leads to
albumin loss and consequent edema.  Phosphorous levels are good.  Calcium
not so good because of the protein loss.

I don't consider myself a tourist (Fight Club) but the talk of fistulas and
dyalysis and transplants is very sobering for what could be on my horizon.

Worried unwell.