🚀 go-pugleaf

Hello, in June of this year I formed a support group for Noonan Syndrome.
Here is a little information:
It is believed that 1 in 1000 children worldwide are born with this
    condition. 
    Each day 1 child is born with the condition. 
    It's possible that 1:100 people carry the gene yet
    are virtually unaffected and undiagnosed. 
    Once affected there is a 50/50 chance of passing
    the gene on to one or more of their children. 
    It can also occur sporadically, presumably due to a
    new mutation. 

Often called a "Hidden" condition, the children affected
may have no obvious casual signs to the onlooker, but
the problems are many and complex with no clinical test
available. This is a genetic condition affecting the heart,
growth, blood clotting, mental and physical development. Affected individuals
may have behaviour problems, learning difficulties and many other anomalies.
Noonan Syndrome may be the second commonest to Down's Syndrome of
those conditions with congenital heart abnormality.
Thank you for reading.
Wanda

Wanda Robinson
PO Box 145
Upperco, MD. 21155
USA
410-239-6926
wandar@ccpl.carr.lib.md.us
All CONTRIBUTIONS ARE ACCEPTED, AND WILL BE PUT TOWARDS HELPING THE NEXT
FAMILY THAT WANTS INFORMATION ABOUT NOONAN SYNDROME....

The Noonan Syndrome Support Group, INC.
Web page.
http://www.paston.co.uk/users/maygurney/tnssg.html
List:
NOONAN-SYNDROME@HOME.EASE.LSOFT.COM

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