🚀 go-pugleaf

There is a Group for that. You should stop by.
http://groups.yahoo.com/group/samters/

Presently, they are comparing research studies and are compiling a list of
their common symptoms.


"Funny Face" <myfunnyfaces@hotmail.com> wrote in message
news:a9a7f2ef.0304251723.779ce155@posting.google.com...
> Recently, my boyfriend was advised by the ENT that he had Samter's
> Syndrome, and that he was actually DYING from it.  The surgery is
> scheduled in the next two weeks.  I have looked and looked all over
> the internet, and have found only limited information regarding this
> illness/syndrome.
> I found one article which indicated that in a very *very* rare case,
> where sinusitus was left untreated, it could infect the bones of the
> skull, causing death.  However, when I search for  fatality or
> survivability ratios, the information is sparse, and does not even
> address quality of life, or fatality.
> It might be worth noting that my boyfriend also has Krohn's Disease,
> which can give him a bit of trouble.  The Samter's Syndrome is
> classic, for him: Allergy to aspirin, mild asthma, polyps,...  The
> poor thing sounds just awful when he gets stuffed up and now his face
> is swollen!
> He lost his breath, and sounded like he was drowning, this morning...
> We called the Doctor who told him to start taking the pre-operative
> medication (he had been taking Augmenten for a few days, but was told
> to discontinue).  He is on Nasonex, which seems to help, as well.
> Now, my major questions are:
> Is Samter's Syndrome something which can be fatal?
> Is Samter's Syndrome mainly a detriment to  quality of life? (and not
> seen as a fatal disease?)
> I understand that the polyps may be reoccuring... can the polyps cause
> blindness?  (Something about pressure on the occular nerve or cord??)
> My BF was told there is an infection that is all over his sinus cavity
> and can lead to blindness or death, and that there is infection near
> the lining of his brain from this???
> Oh- he is a painter, by trade, for 22 years- and has not always used
> proper safety eq.  I believe this may have contributed to the
> destruction of his lungs (asthma) and add to that, he smokes over two
> packs a day.  I'm sure these factors are very harmful in the treatment
> of the triad.
> He is not very good at explaining things, and I have set an
> appointment with the DR (and him) so that I can get more information,
> but in the meantime, I wouold be extremely grateful for any feedback
> provided.
> THANKING all serious responses, Kindly, in advance.
>