🚀 go-pugleaf

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I am posting to the list instead of just to Brenda because I feel my story
may help others as well.
When I had my first biopsy over 10 years ago my doctor told me the results
were low positive and to stay on a low gluten diet.  Since I did not know
any better I tried and was still sick so I went to a second
Gastroenterologist.  I brought my biopsy report with me and he read it as a
neg biopsy.  He then did a repeat biopsy.  I was getting very sick going
back on gluten so we moved the date ahead.  I was probably back on gluten
only a week at the most.  Of course this test was neg.  He told me that I
was just not use to eating gluten and I should get back on it slowly.  I
knew better at this point.  I stayed gluten free but it really bothered me
that I did not have a definite diagnosis.   At that point I met someone who
also had celiac and she recommended her doctor.  I went to see him and of
course brought my original biopsy report.  He told me that no matter what
the biopsy read he knew from my symptoms that I had celiac and I finally
learned what gluten free meant.  About a year later I saw his partner and he
looked at my biopsy.  Said it looked like a positive result to him.

Brenda,
My advise would me not to have a second biopsy but let another
gastroenterolgist  look at the report.

Ginny Mingolla
mingolla@rci.rutgers.edu
New Jersey, USA

** Please remember some posters may be WHEAT-FREE, but not GLUTEN-FREE **