als the pbp variant

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1 total messages Started by Marla Broom Thu, 23 Nov 1995 00:00

#37

Author: Marla Broom
Date: Thu, 23 Nov 1995 00:00

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My friends mother, age 79, was just diagnosed with a variant of lew
gerrig's disease known as progressive bulbar palsy.  We got some infor-
mation from the Merck Manual and from her mom's doctor of course but we
were wondering if there was anyone on the list who has had personal
experience with this and could give the family some ideas as to how best
to go forward, what to look for, things to avoid, probable progression
and alternatives to consider for living arrangements, etc.
        any experiences or suggestions would be helpful.  Her mom is
currently living alone in her own home.  thanks.  marla broom

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