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4 total messages Started by av984 Sat, 19 Jul 1997 00:00
Help! Need info about dental work for my retarded child.
#11669
Author: av984
Date: Sat, 19 Jul 1997 00:00
45 lines
3097 bytes
Help! Need info about dental work for my retarded child.

Would you please share with me your good/bad experience with dental work
(crown, root canal, extraction, etc.)for a severely disabled teenager
under IV sedation in clinic and/or under general anesthesia in OR.

This is the situation with my 18 year old son Sterling who doesn't walk or
talk and is developmentally functioning at the level of a toddler:

For the past 15 years Sterling has received dental treatments such as
cavity fillings, plastic sealants, and even baby tooth extraction in
clinic from a pediatric dentist.

During treatment Sterling was immobilized in a papoosh board and a clamp
was used to keep his mouth propped open. No sedation was ever required and
I was permitted to stay in the room with him during his dental treatments.
Sterling never cried and was always calm and cooperative.

Recently the dentist told me that Stering had developped serious cavities
and that he will probably require crown/caps and even root canal and that
this would need to be done under sedation in a hospital, perhaps even
under general anesthesia in OR.

I'm very concerned about the general anesthesia's high risk factor. My
instinct is telling me to avoid it at any cost. I'd like to know more
about IV sedation. How safe is it?

I'd also like to know how can a crown be placed in a mouth of a child who
is unable to talk or communicate how the crown fits in his mouth? How
would the dentist know if the crown needs adjustment?

I would be immensely appreciative for any help or guidance I could
receive.
I'm the author of Shirley's Wellness Cafe: Holistic Health Care for People
and Animals, a non-profit/public service educational site located at
http://www.geocities.com/HotSprings/1158/

Please cc email your response to av984@lafn.org

Thank you.
Shirley

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Re: Help! Need info about dental work for my retarded child.
#11668
Author: Lane Browning
Date: Sat, 19 Jul 1997 00:00
57 lines
3656 bytes
av984@lafn.org wrote:
> 
> Help! Need info about dental work for my retarded child.
> 
>> 
> I'm very concerned about the general anesthesia's high risk factor.

I don't know how "high risk" came to be associated with general 
anesthesia--were you told it was "high risk?"  In developed countries 
surgery is performed under general anesthesia a bazillion (pardon my 
lack of specifics!) times an hour, and complications are rare.  In the 
hands of a trained anestheisiologist, such things are not terribly 
risky (well, everything is relative, of course--they're more risky that 
sitting in an arm chair, but less risky than taking a car ride).  
Understand, I do empathize with your fears if this is the first time 
you've dealt with this, but my son had four surgeries, all with general 
anesthesia, between ages two months and 13 months, and things went fine. 
Yes, it was terrifying, but....has no one in your family had any kind of 
surgery--tonsillectomy?  Appendectomy?  Tummy tuck (:-)?

The last surgery my son had was the scariest because it was longest (5+ 
hours) and it was harder for him to wake up.  But when he did he was 
immediately his old self.

 My
> instinct is telling me to avoid it at any cost. I'd like to know more
> about IV sedation. How safe is it?

I think IV sedation is very very safe; I had have it on several 
occasions (including for the birth of my child).  And I am one of the 
SENSITIVE ones, a person who reacts badly to many drugs--I did throw up 
for 24 hours after one instance of general anesthesia, and I had tremors 
for hours after my son's birth (I have a really sensitive 
immune/nervous system).  But as I understand it these kinds of reactions 
are very rare, and I *did* survive them.

Sterling is basically a large toddler, and toddlers can and do get 
through amazingly difficult/complicated medical things, including heart 
transplants and critical injuries and such.  Also, his larger size is a 
boon--imagine if he weighed only 12 pounds!  I think that if you educate 
yourself and try to talk to Sterling about it, you might feel better.  
Certainly it is not an easy decision to make.  The briefer the period of 
sedation the better, obviously.  And check the credentials of the 
anesthesiologist.  

And you said your "instincts" are telling you something, so don't 
totally dismiss them!
> 
> I'd also like to know how can a crown be placed in a mouth of a child who
> is unable to talk or communicate how the crown fits in his mouth? How
> would the dentist know if the crown needs adjustment?

That's a very good question.  He/she would have to use the bite device 
and hope for the best.  Does Sterling have any sign language at all?
> 
>I wish you and Sterling the best--hang in there!
Re: Help! Need info about dental work for my retarded child.
#11666
Author: David W. Morgan
Date: Sun, 20 Jul 1997 00:00
79 lines
4397 bytes
My heart stopped beating when I had an appendectomy in 1965 with
general anesthesia.

I've also had problems with the nitros oxide or whatever it is at
the dentist office.

Sorry to alarm anyone.  I am not autistic, BTW.

Davdi


In article <33D111BE.5677@worldnet.att.net>,
Lane Browning  <rainmaid@worldnet.att.net> wrote:
>av984@lafn.org wrote:
>> 
>> Help! Need info about dental work for my retarded child.
>> 
>>> 
>> I'm very concerned about the general anesthesia's high risk factor.
>
>I don't know how "high risk" came to be associated with general 
>anesthesia--were you told it was "high risk?"  In developed countries 
>surgery is performed under general anesthesia a bazillion (pardon my 
>lack of specifics!) times an hour, and complications are rare.  In the 
>hands of a trained anestheisiologist, such things are not terribly 
>risky (well, everything is relative, of course--they're more risky that 
>sitting in an arm chair, but less risky than taking a car ride).  
>Understand, I do empathize with your fears if this is the first time 
>you've dealt with this, but my son had four surgeries, all with general 
>anesthesia, between ages two months and 13 months, and things went fine. 
>Yes, it was terrifying, but....has no one in your family had any kind of 
>surgery--tonsillectomy?  Appendectomy?  Tummy tuck (:-)?
>
>The last surgery my son had was the scariest because it was longest (5+ 
>hours) and it was harder for him to wake up.  But when he did he was 
>immediately his old self.
>
> My
>> instinct is telling me to avoid it at any cost. I'd like to know more
>> about IV sedation. How safe is it?
>
>I think IV sedation is very very safe; I had have it on several 
>occasions (including for the birth of my child).  And I am one of the 
>SENSITIVE ones, a person who reacts badly to many drugs--I did throw up 
>for 24 hours after one instance of general anesthesia, and I had tremors 
>for hours after my son's birth (I have a really sensitive 
>immune/nervous system).  But as I understand it these kinds of reactions 
>are very rare, and I *did* survive them.
>
>Sterling is basically a large toddler, and toddlers can and do get 
>through amazingly difficult/complicated medical things, including heart 
>transplants and critical injuries and such.  Also, his larger size is a 
>boon--imagine if he weighed only 12 pounds!  I think that if you educate 
>yourself and try to talk to Sterling about it, you might feel better.  
>Certainly it is not an easy decision to make.  The briefer the period of 
>sedation the better, obviously.  And check the credentials of the 
>anesthesiologist.  
>
>And you said your "instincts" are telling you something, so don't 
>totally dismiss them!
>> 
>> I'd also like to know how can a crown be placed in a mouth of a child who
>> is unable to talk or communicate how the crown fits in his mouth? How
>> would the dentist know if the crown needs adjustment?
>
>That's a very good question.  He/she would have to use the bite device 
>and hope for the best.  Does Sterling have any sign language at all?
>> 
>>I wish you and Sterling the best--hang in there!
>
>


-- 
dmorgan@efn.org  _/_/_/_/_/  David W. Morgan  \_\_\_\_\_  Honolulu  Hawaii
http://www.efn.org/~dmorgan/congress.html - Congressional E-Mail Addresses
http://www.efn.org/~dmorgan/worst.html ------- Worst Web Pages of Congress
http://www.efn.org/~dmorgan/legis.html ----- Hawaii Politicians on the Net
Re: Help! Need info about dental work for my retarded child.
#11667
Author: David W. Morgan
Date: Sun, 20 Jul 1997 00:00
16 lines
1501 bytes
It's pretty bad when I can't even spell my own name.

I should have pointed out that I must have had a local anesthesic
with my appendectomy.  I was consious until my heart started hurting
so badly and then I blacked out.  You've heard of out-of-body experiences?
Wow.

David


-- 
dmorgan@efn.org  _/_/_/_/_/  David W. Morgan  \_\_\_\_\_  Honolulu  Hawaii
http://www.efn.org/~dmorgan/congress.html - Congressional E-Mail Addresses
http://www.efn.org/~dmorgan/worst.html ------- Worst Web Pages of Congress
http://www.efn.org/~dmorgan/legis.html ----- Hawaii Politicians on the Net
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