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3 total messages Started by Jimmink R.A. Wed, 24 Aug 1994 09:23
HELP NEEDED, PLEASE READ
#4555
Author: Jimmink R.A.
Date: Wed, 24 Aug 1994 09:23
38 lines
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Dear Netters,

Since I am almost totally ignorant on medical issues, this may or may not 
be the appropriate newsgroup to ask this question. But in that case, please
provide directions to the appropriate places.

I am posting this on behalf of a friend of our family. She is in her mid-
thirties and has become fully blind about 5 years ago (probably by a
hereditary cause). Although she is now fully blind, some time ago light
flashes started to appear, almost like disco lights. This phenomenon is
very disturbing for her. Recently these light flashes have started to appear
more often, increasing her problems.

In the Netherlands this phenomenon is apparently very rare, and at the moment
no help is available from the medical world. Not even a lead to the cause
of this phenomenon is known to us. 
She is slowly getting desparate and needs help.

My questions are:
 - does anyone recognize this phenomenon?
 - could anyone provide any leads to more information about this phenomenon,
   what causes it, and, if anything, what could be done about it?
 - could anyone provide leads to sources of relevant information, which
   medical discipline might be of help?
 - is there a support group for people with this problem?  

ANY leads and help will be appreciated very much.
Please reply to my email-address.

Thanks for your attention,
        Ronald Jimmink
        R.A.Jimmink@research.ptt.nl
-- 
___________________________________________________________________________
| Ronald A. Jimmink                       | PTT Research                  |
| tel: +31-70-3324701 fax: +31-70-3326477 | P.O.Box 421                   |
| email: R.A.Jimmink@research.ptt.nl      | Leidschendam, The Netherlands | 
Re: HELP NEEDED, PLEASE READ
#4552
Author: knunan
Date: Mon, 29 Aug 1994 01:07
13 lines
1641 bytes
Obviously your friend needs to speak with an ophthalmologist or
neurologist  or both. I have heard of this condition and another
one called floaters where people (not necessarily blind) see little
black spots floating in front of their eyes. Also very
annoying. I do not believe anyone knows the precise causes of
these disturbances but they are related to the central
nervous system. They are not really curable --- perhaps some
CNS depressant drugs might help but one would have to weigh
the magnitude of the problem against the need for taking such
drugs. If I were blind I would want to keep all my other
senses heightened and such medications would definitely be
out.  
Re: HELP NEEDED, PLEASE READ
#4553
Author: SCOTT I CHASE
Date: Mon, 29 Aug 1994 21:02
39 lines
3047 bytes
In article <33r28c$3ek@www.interramp.com>, knunan@.interramp.com writes...
> 
>Obviously your friend needs to speak with an ophthalmologist or
>neurologist  or both. I have heard of this condition and another
>one called floaters where people (not necessarily blind) see little
>black spots floating in front of their eyes. Also very
>annoying. I do not believe anyone knows the precise causes of
>these disturbances but they are related to the central
>nervous system. 

Sorry, I did not see the original post.  But I want to comment that "floaters"
are very common and are unrelated to any CNS disorder.  They are acutally
optically thick pieces of gel floating in the vitreous humour (sp?).  They
tend to occur in a person's 20's or 30's.  My Mom noticed that my Dad 
had them when he started complaining the his morning glass of milk was 
always dirty.  (He spilled out a lot of milk before going to the 
opthamalogist.)  

I developed a few myself.  They are completely harmless, though annoying
if they occur near the center of your field of vision.  Over time, 
measured in weeks to years, they can move, though not necessarily. 
Mine are not black dots, but fuzzy dark regions with "tails", i.e., they 
are irregularly-shaped bodies.

They are not treatable, so far as I know.  Once the opthamalogist
calmed me down and asured me that I was going to live, I basically had
to learn to ignore them.  I have only one which is poorly situated and
can be annoying when reading.  But considering all the problems one can 
have with eyessight, I don't sweat it much.  As a total percentage of 
my field of vision, my floaters are quite insignificant (surely much less
than one percent.)  The only time they still bother me is in fast-moving
situations, like when I am flying down a hill on my bike.  Sometimes I 
can notice one and "chase it" off to one side of my field of view, 
distracting me slightly from real input for a fraction of a second.   

-Scott
--------------------
Scott I. Chase	                      Mutationem motas proportionalem 
SICHASE@CSA2.LBL.GOV                  esse vi motrici impressae.
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