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Index Number: 26302

[This is from the Rare Disorders Conference]

On 92-11-27 (13:39) Jeff Rosner wrote:

JR>My wife (31YOWF) suffers from vitiligo and I'm trying to obtain as much
JR>information as posible on the subject.  She's been symptomatic for about
JR>3-4 years but the disease has not progressed over the past 12 months.
JR>(She attributes this to vitamin/mineral/amino acid supplementation on
JR>her part.

JR>Does anybody have any information or can direct me to available
JR>resources?

Jeff:

This is further to my reply to you of December 8th, in which I
quoted some material on vitiligo from the Merck Manual.  Since
then, I have found out some further information on effective
treatments for this condition.

Recently, the Canadian Broadcasting Corporation (CBC) aired a
segment on their program "Marketplace" describing how some
Canadians travel to Cuba for healthcare to obtain treatments which
are not available either here in Canada or the U.S.  The two
conditions for treatment is offered are retinitis pigmentosa (or
R.P. for short) and vitiligo.

The treatment for R.P. is apparently successful in arresting the
further proress of the disease, and restoring some degree of
function.

The treatment for vitiligo consists of a exposure to sunlight after
application of a topical solution.  This solution contains elements
extracted from placental material.  (I can't remember the exact
name of the drug.)  Apparently, in a large number of cases,
significant repigmentation results from the treatment.

You might wish to contact the CBC for a videotape copy of this
program, or a transcript of it to obtain details.  (I realize that
travel to Cuba for treatment is not too likely due to the current
political climate between the U.S. and Cuba but I thought that the
material might be of interest anyway.)

You can contact the CBC at the following address:

CBC MARKETPLACE
P.O. Box 2000,
Station "A",
Toronto, Ontario
M5W 2A2
Canada

Ian Hebert                      Internet: ian.hebert@homebase.com

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