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Index Number: 26303

[This is from the AbleNews Conference]

RS>Thanks for the info.  Will try to find a copy.  The form of MD my wife has i
RS>Charcot-Marie-Tooth.  Both her father and brother have it as well as an uncl
RS>We have been unable to find any females who have this except my wife.
RS>Does anyone know of any females who have Charcot-Marie-Tooth form of
RS>MD?

HI!
Quite a few women have Charco-Marie Tooth.  I believe it was first
classified in a woman! MDA covers this form of ataxia because there is
often muscle atrophy in the later stages.  There is another
organization that has lots of information on this, the National Ataxia
Foundation, 750 Twelve Oaks Center, 15500 Wayzata Blvd, Wayzata, MN
55391. (612) 473-7666  This year's annual meeting will be in Houston,
TX, March 12-14. Another organization is National Organization for Rare
Disorders, but I have little information on that.

  Other places of information include the Index Medicus which lists
medical journal articles.  They can be found in libraries of colleges
with nursing schools (Gulf Coast Comm. Coll. at least used to have it)
and of course medical schools, but it is a *slow* process.  (The jour
als indexed that you want are never there--but there is always
inter-library loan. You may have to pay for copying).  You can order
computer searches at medical schools, but need to know the proper key
words to get any information. The National Library of Medicine in
Washington, D.C., is terrific--you can run your own computer searches of
books and journals on their "in-house" computers. They also have a way
those with modems can access their files, but I didn't have a modem when
there and haven't got such a system set up yet.

  Had a very good chat with you wife (we are in the same area!), but
have decided to post this anyway in case others are interested.

  Let me know about the new paper.
  TTYL, Marilyn

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